I always love to read about my health and I also love to read mysteries.
So this article was especially interesting to me.
I had no idea there was a special network to research these unusual cases.
From the article:
"For some, there was good news: a treatment, often a drug that was already on the market for another condition.
Yet even patients who come away with a diagnosis but without a treatment, say the experience can be rewarding.
'Patients find it really valuable even just to give a name to the enemy,' said Dr. Euan Ashley, a geneticist at Stanford University and co-director of the network.
Those who come away without a diagnosis or treatment are told that if the science improves and an answer for them emerges, the network will contact them.
“We never give up,” Dr. Ashley said."
I am so glad there are medical professionals like these!
Any medical mysteries out there?